Have you ever seen someone who walks different than you? Someone who talks different? Someone in a wheelchair? Perhaps you didn't have a clue to what you should say to them; therefore, you look, walk away and say nothing.
I want to invite you into my world of adventures. I will share with you about the disease I was born with, how I am learning to do things like you do, and share times with you when I have been happy, sad, scared, lonely and confused.
Through my Adventures, I want to share my life, my family, and the fun I have on my adventures. My disease, Rett Syndrome, took away my words, my walking, and the use of my hands in the way that the rest of my family and friends can.
I will share all of this with you through the expressions of my eyes, actual pictures throughout my journey, and also through my thoughts and words I hear inside my head.
Neurological disorder Affects girls almost exclusively Normal early growth Regression by age 2 Loss of purposeful hand use Distinctive hand movements Slowed brain growth Slowed Read More »